Of course as always aiming for a good A1C and self management.
Tuesday, December 31, 2013
Of course as always aiming for a good A1C and self management.
Thursday, December 26, 2013
Thursday, December 19, 2013
Be warned, I got some pics below you may not like.
That’s why I waiting until the next day so that I could go bedyby. Next morning, I ran into an issue with two more that I tried to insert.
This is the applicator that is attached to the sensor, it seemed to be stuck to the sensor itself. You should be able to pinch the release tabs on the sides and rock the applicator out, but that wouldn't work. It seemed like the entire things was melded together. It happened twice before I tired the last one that I had and the 4th time was the charm. (I know, you're thinking operator error, but I promise, hubby tried too and couldn't get it to budge!). Now that I've really been living with this new attachment for a full 14 days here is my opinion and how it works…..
Here is the sensor that goes under my skin............................
Here is the top of the sensor that the transmitter attaches to
This is after wearing it for almost 11 days.
My skin today after changing it out on Sunday, today is Thursday.
So I guess nothing was in a nutshell. Of course I'm going on and on and on.....................
There have been other "D" life things that maybe I'll get around to sharing one of these days.
Thursday, December 5, 2013
I decided that this Christmas I would carry on Brad's mom's tradition and get him an ornament. He then decided to do the same. This is what he gave me. It's really a meter he bought for a few dollars off of Ebay and then painted on the number.
Tuesday, December 3, 2013
Saturday, November 30, 2013
I haven't had a really BAD low in a while. As I've said in prior posts, I'm burnt out. That tends to lead to more highs than lows for me. I've been hitting high numbers that I'd rather not admit to. Today, I had a BAD low that I couldn't hide. Usually, I'm at home with hubs, or work when one like that hits and I either hide it, or just get through it with hubs watching over me. Somehow I haven't had one hit like this around friends or other family. Today, it happened. I was at a baby shower. I had just checked my bg, I was 80 but felt I could be dropping so I went ahead and ate a cake ball. I sat down next to my mother in law to eat it and watch gifts being opened. I started to get really hot and weird, but just wanted to wait it out. 20 minutes went by, she finished opening gifts and I was feeling worse. I went back to my purse to grab my meter and check. A good friend of mine was right there and asked how I was and before I could say anything saw I was at 42 and she knew I needed straight up sugar. I followed her to the kitchen for another cake ball feeling like I had to be dripping with sweat and like my head could just roll off my shoulders. As we walked to the kitchen my family was calling fur me to get my picture taken with the mommy to be and I had to just shake my head and throw my hand up for them to wait. I felt bad knowing they were all waiting on me and that others were waiting to talk to mommy to be, but I had to do what I had to do. I grabbed the cake ball, walked out for the picture and I think I heard my aunt in law say, "oh she is crashing" as I shoved half in my mouth. I posed for the picture and then shoved the other half in as they looked at the first one before taking another pic. Last few days with the highs and now this low have me anxious for the Dexcom cgm. As much as I'm valuing my freedom from another attachment, I'm looking forward to something to tighten my control.
Tuesday, November 26, 2013
Thursday, November 14, 2013
In other news..... With today being world diabetes day I thought that it was kinda ironic that yesterday when I was at Target and I walked down the ailse to get coffee filters the first thing I saw was blue cake mix! I immediately thought of blue Fridays, today and diabetes awareness. I didn't buy the mix just took a pic. Enjoy today!!!
Tuesday, November 12, 2013
I was doing so great about keeping up with the photo a day for Diabetes Awareness month, and then the weekend happened. As usual, busy. I'm not going to try and catch up, I'm just going with todays photo. Work. Top portion of the photo is of my "D" bag that I literally cannot live without and goes with me every where. A coworker actually gave it to me. It was her cosmetic bag and she had it out on her desk one day and I saw it commented that with the two pockets it would be perfect for a "D" bag and asked where she got it. She had gotten it at Marshals but she gave it to me right away when I said what it would be great for. It had been the only one left when she gut it. I keep in it at all times two different bottles of test strips along with two different meters, a Sharps container for used test strips and needles, lancets, an extra reservoir of insulin, extra infusion set, batteries for my pump, glucose tabs, and a back up Novalog flex insulin pen This sits on my desk at work right next to the phone.
That bottom portion of the photo shows my snack drawer at work. Trail mix, emergency fruit snacks, after lunch dark chocolate (that I count as part of my lunch carbs almost every day).
Friday, November 8, 2013
Late yesterday into last night was BAD. It's been busy at work and honestly diabetes was the last thing on my mind yesterday afternoon. I didn't realize until 4:30ish that I had been peeing about every 30 minutes or so and guzzling water. Even when I'm not high I drink a lot and pee a lot. That was more than usual. I realized it as I was trying to get my last order in for the day and my head started to feel heavy and I couldn't concentrate on my computer screen, and I had to pee again. I ran to the restroom, filled my water bottle and then checked my bg. 220, that explained it. So I gave myself just a tad less insulin than what my pump said because I planned to be home and getting a good work out in, in less than an hour. I didn't want to have too much insulin in my system and crash. But that's exactly what happened. I got home, I had dropped to 198 with about 2 units of insulin on bored, and I set my pump at a temp basal of 60%. BAD IDEA!!! I should have not worked out, or disconnected, or gone much lower on the temp basal, or suspended my pump, or..... Who knows what I should have really done. In 30 minutes of biking I dropped from 198 to 45. Ok, as if that wasn't bad enough I skyrocketed after dinner to 210. Needless to to say I felt like crap and diabetes was being a totally butt head. I guess it was about time tho. Vacation, no real issues, being out of town last weekend, no real issues there. So having a craptastic night I should have cut myself some slack, but at the end of the night I didn't. Brushing my teeth at about 10:30 and Brad comes in. Right when I was putting mouthwash in my mouth he said something along the lines about how I hadn't had a day like that in a while and what happened? I leaned against the wall swishing mouthwash around inside my mouth and the tears started to well up. He didn't mean that it was my fault, but as it goes, I was playing the blame game. Shoulda, coulda, woulda going around in my head and feeling guilty but thankful at the same time that I'm not pregnant. Then wondering if me getting pregnant is such a good idea. Can I hack it? A day like yesterday and who knows what that would do to an unborn child!!! I know I was going overboard, but that's how it goes. As the tears were streaming down my cheeks and I have my mouth full still, Brad just grabs me and hugs me, rubbing my back and telling me it's okay. Ever Mr positive, he says things like, you are healthy despite the diabetes, you take good care of yourself, you are alive, not in a comma or having seizures. You have never had to be admitted to the hospital, it's been a while since you've had a really bad day. Cut yourself some slack. You are okay. He was right. Diabetes was being a total butt head, not playing nice, it never does, but I have to cut myself some slack. If we knew what happened or why then we would have a better understanding of the disease but we don't. If we did there might be a cure. So while there isn't one and we wait, we fight back and play nice even when it doesn't and cut ourselves some slack otherwise we'd go insane!
Thursday, November 7, 2013
Todays photo prompt is Blue. Blue is the color of diabetes awareness. Fridays are known as Blue Friday, where diabetics far and wide wear the color blue as a sign of awareness and support. I really don't own anything blue, guess I really should change that, therefore I don't participate in Blue Fridays. However, when looking for an image on google that would be good for todays prompt I came across this one. Why blue m&ms you might ask? There are a few things to be learned from just this pic, and the fact that they are blue is just a plus. For one, yes I can eat them if I so choose, I would just have to figure the carb count and bolus correctly. Next, m&ms, as well as any chocolate, are not a good choice for treating a low because they are full of fat which in turn slows the rise of blood sugar. Therefore won't do the job quickly enough. So there you have it for today folks.
Wednesday, November 6, 2013
There are a lot of important relationships when it comes to diabetes. All of them incredibly important to the mental and emotonal as well as physical health of a diabetic. Endocrinologist, CDE, nurses, the DOC (diabetes online community), parents, siblings, significant others and the list goes on. I picked this picture of Brad and I on our wedding day taking communion. I think that this picture is pretty significant because it includes both of the most important relationships in my life. For one my relationship and faith with God is huge in my life and keeps me grounded, that signified by the communion. My hubby, keeps me sane and can deal with all my crazy emotions, the financial stresses, when I feel sick and cranky from highs and lows, all my diabetes talk (there is a LOT sometimes), learning and being very attentive to signs of my highs and lows, and being patient all along with adding a sense of humor in a way only he can. Dealing with things that come with being married to a T1D (and female to boot). I know I have gone on before about how great he is and handles it and me amazingly but it's true. Having at least one strong person in the corner of your fighting cage is essential, because everyday, even the "easy" ones are a fight and it's impossible to fight these battles alone.
Tuesday, November 5, 2013
This was a tough one for me. I wouldn't necessarily consider myself an advocate for diabetes awareness so no pics for that. I decided to google celebrities with type 1. That jogged my memory of an article I read a while ago about Elizabeth Perkins. I couldn't find the one that I originally read so this one http://www.foxnews.com/health/2012/11/21/actress-elizabeth-perkins-discusses-life-with-diabetes/ is pretty good.
Monday, November 4, 2013
Sunday, November 3, 2013
National Diabetes Awareness month: day 3 photo op is snacks.
We just just got back in town from visiting my inlaws for the weekend. We had taken a cooler with a few things in it with us and there were a few things to be unpacked when we got back. As I was putting things away in the fridge I saw the brand new jar of sweet pickles that hubby bought the other day. I love sweet pickles but haven't had them in possibly years. I just don't really think about them. I took the jar out thinking that they couldn't possibly have that many carbs in them and maybe they would be my new go to snack with 0 to very few carbs. Wrong! 8 carbs per pickle! That's one unit of insulin for me. I guess I should know that sweet is not deceiving in the name, they really are sweet. Too sweet for me and my already sweet self.
November is diabetes awareness month. Two days into it and I had my first opportunity to help educate and bring more awareness to someone. My awesome mother in law. I sat down with her last night and pretty much gave her a tutorial on my how my pump works. She had lots of questions, was genuinely interested in how it works and how my meter that link together work. It was the first time since having my pump someone had really wanted to know and it was really nice to sit down with her and explain things. It gave me the warm fuzzies. Afterwards she said how smart I have to be, yup, pretty much. It's a lot to take in.
Now with it being diabetes awareness month I'm going to try my best and along with lots of others post a pic a day in the life of diabetes. List of below. November 1st was "Past". So the first pic you see below is with my friends only a month or so after diagnosis. I still look really skinny and pale. I don't think I had even been able to see a diatian yet. I couldn't have gained much weight yet either. When I was diagnosed I was only 105 lbs.
November 2nd picture is "Check". This picture is a note to myself at work to remember to check my BG and possibly bolus insulin or eat something. That was a rough day that I never got around to blogging about as I had planned.
Todays pic is "Snack" but I got nothing yet.
Wednesday, October 30, 2013
For some reason security always makes me nervous and I don't know why, but it really does.
I'm not afraid of dying from a plane crash or anything, its just all the stress of the above. Then add my lovely companion "D" to the equation and it's all sorts of fun. Wondering if I'm going to go low sometime during the whole TSA check point process and act goofy or run high and end up feeling like crud while traveling.
We just got back on Friday from family vacay to Ft. Lauderdale, it was wonderful!
This was my first time flying with my insulin pump. Insulin pumps cannot go through the xray machine, body scanners or scanned with the luggage. Going thru any of these machines will scramble, completely drestroy the pump. You wouldn't think that this would be an issue with TSA but I've read that it can be. I had read on multiple blogs among the DOC about the TSA Cares program, all of which was good feed back so I decided to give it a shot in hopes that it would alleviate some stress. Unfortunately for me, it seemed pretty worthless. Here is my experience....
We were to leave on Friday the 18th, I called the number for TSA cares 72 hours a head of time as I should have. Government was still shut down, my hopes were not high due to this. I talked to an incredibly nice lady who went over how things "should" go and who informed me that due to the shut down there may not be a passenger assistant to meet me once I got to the airport but she would note it in their system that I was requesting someone. If no one was available I should have no problem just asking for a patdown once I reached the TSA check point is what she told me. Thursday the 17th in the afternoon I received a call from a very nice gentleman at TSA Cares. Now that the government was no longer shut down they would have someone meet me when I arrived at the airport. Call when ten minutes away and he would let me know what to expect, who and where I was meeting someone is what he told me. Sounds good so far right? That's what I thought. Next morning I called like he said. He told me to ask for Amanda Woods when I got to the TSA check point. Okay, great, thank you sir. Get to that point, she wasn't working that day, but if I just let them know right before they ask me to step through the metal detector they will do a pat down no problem. Hmmmm.... Go thru the rest of the line, get to the front and inform the lady that I am unable to disconnect from my pump or go through the scanner or xray machine. She didn't understand, told me first to go down to the body scanner, I said politely but firmly no, I need a pat down please. My pump cannot go through any machine. She then told me to send it thru with my carry on luggage, again asked for a pat down. She still wasn't getting it and told me to just go through the xray machine. Again, I requested a pat down and this time she said she didn't understand. At this point an older TSA agent had walked up and finally intervened. She said she would do the pat down if my husband watched my stuff. She was very nice, explained what she was doing during the molestation, I mean pat down process. I know why they have to get so physical I understand but doesn't mean I'm comfortable with it. Finally, that was done and we were on our way.
This shows how stress totally affects blood sugar levels. Before going thru TSA and after.
Following Tuesday before our flight home on that Friday I received a call from Jim at TSA Cares out of Ft Lauderdale. He was nice enough, but he did mention that their new scanners were safe for all medical equipment to go thru and for everyone's convenience I should just go thru them. I explained to him a second time because he obviously didn't hear me the first time I told him why I was opting for a pat down. I said I understood it may not be the most convenient but I was not willing to take a chance with my $8,000.00 piece of medical equipment. Unlike the flight down he was at the checkpoint waiting for me when we arrived at the airport. He was nice enough I guess, yet after he had arranged for a female agent to pat me down he went into a whole schpeel again about how inconvenient it is to take time out to do a pat down and arranging for a passenger assistant. This takes people away from the stations that they are already working at and they are not always able to pull people right away when they are short staffed. He also said that I needed to do more research before I fly next time and I'll find that all their equipment is perfectly fine for my pump to go through. I'm not sure how many times I had already told him why I would only accept a pat down but by then I just wanted to find hubby and get to our gate. This guy was an awful representative of TSA Cares because he really didn't care. Will I try the program out again? I don't know. It will probably be another year or so before I fly again so it depends on if the program is still around by then and what I read about it in the DOC. My personal experience says that TSA does not care and that just asking for a pat down when I arrived instead of going thru phone calls gets the same results. At the same time I've worked customer service and delt with people long enough to know that the person representing may not necessarily reflect the policies, beliefs and attitude that the organization, company, or intuition would like to have reflected. With this being the case I'm sure that TSA Cares is meant to care, but sadly I didn't receive that experience.
Monday, October 21, 2013
We just got back Friday from a family vacation, more on that later. But over the course of the week I thought about a lot of what I've still done despite diabetes.
As I was standing on the beach tonight with the not quite full moon shinning down on the ocean and feeling and listening to the waves and feeling the wet sand beneath my feet this is what came to mind.
Despite diabetes, I am standing barefoot on a beach feeling the waves.
Despite diabetes I am standing here with the love of my life and enjoying this moment.
Despite diabetes I just had two glasses of wine at our favorite bar/restaurant in this vacation spot.
Despite diabetes I shared a chocolate ganache pretzel dessert that was a little peice of heaven with my hubby.
Despite diabetes I am on vacation with my family and loving every minute.
Despite diabetes I drove 4 hours with my family to Key West and saw the southern most point in the United States.
Despite diabetes I sat in bed with my niece and nephew watching cartoons this morning.
Despite diabetes I got to see my sister's wedding ceremony Friday night.
Despite diabetes I still wear fun shoes.
Despite diabetes I am able to work a full time job.
Despite diabetes I am able to drive and do "normal" things.
Despite diabetes I am able to have a social life.
Despite diabetes I will be a mother someday whether children from my own body or adopted it will happen.
Despite diabetes I am living my life in a way that had I been living 100 years ago I wouldn't have lived probably much past my diagnosis.
Tuesday, October 15, 2013
Tuesday, October 8, 2013
1. I tend to be more conscious of what and when I eat and not over eat.
2. I'm not being rude when I insist that I have to eat before everyone else.
3. If I'm in an atmosphere where others around me are drinking and I don't feel like partaking I can blame it on my blood sugar that I can't.
4. I have to take my purse with me everywhere, it has all my "D" supplies.
5. I always have a snack or food on me so if you are hungry, I can probably help you out.
6. I've developed healthier eating habits.
7. I sound REALLY smart when I talk about Diabetes to someone who knows nothing about it.
8. I've learned to like a wider variety of foods including veggies.
9. When I'm preggers I'll get to see my baby in my belly more, (ultrasounds) and hear the heart beat of the baby more often than someone without type 1.
10. If I was to dress up for Halloween as a doctor I bet my pump would be a great prop! It would look like a pager!!!
11. I get to tell funny stories about things that happen like my hubby waking up covered in test strips. (I'll never get over that one)
12. I've learned a lot about my body and myself.
13. I cherish life and those I love more.
14. I'm a much stronger person than I ever thought that I could be.
15. When I eat something like apple pie and vanilla bean ice-cream I savor and enjoy it more since it's not something that I eat as often if I didn't have "D".
Side note- I don't know the last time I ate apple pie and ice-cream and I did the other day. Brad had been asking and asking for me to make an apple pie, it's one of his favorites, was and I guess still is mine too. I've never made one, but I did and it turned out great! I was so proud of myself so I had to have a piece after I slaved away over it. Having it in the afternoon with plenty of hours before bed time and being able to keep an eye on my BG I was able to enjoy without any overnight highs. Every sweet delicious bit was worth not having had any in years.
Friday, October 4, 2013
First time, that I remember anyway, was the night/morning before my wedding. I remember I had already of course had a hard time falling asleep because the next day was the BIG day but then on top of it I had a cold so I know it was a restless sleep because I wasn't feeling 100%. I remember it was a terrible dream. I wouldn't wake up, my roommate couldn't get me up and instead of getting married that day I ended up in the hospital and that's where I woke up. I think that I really woke up right after I woke up in the dream. I was low, and I'm pretty sure it was a bad one, I mean a BAD one. I probably over ate when I went to the kitchen, that I don't remember. I just remember sitting in the chair getting my hair done for the wedding and telling the girl who was doing my hair about the dream.
Then, the other night I had another one. At least I think it was a dream, I mean it was so short, but so real, it was almost like a thought but I'm pretty sure that I was asleep. In it I woke up in bed to paramedics standing over me and feeling horrible and disoriented and my husband standing in the corner of the bedroom with a look of sheer terror on his face. I'm not sure what scared me the most in the dream, how awful I felt, waking up to paramedics over me or the look on Brad's face. It seemed just a little too real. I didn't feel low at all when I first woke up, and I really didn't want to make the effort to get up and check, but after having that dream or whatever, I was spooked. So I checked, and I was low at 60. Not awful, but glad I checked. Once I got out of bed and went to the kitchen then I started to feel it and that started to freak me out. If it wasn't 2:45 in the morning and I didn't have to try and go back to sleep I probably wouldn't have had the juice box, I probably would have done something with a few less carbs and checked an hour or so later, but I wanted sleep and was scared that for some reason I was dropping even though I had no active insulin in me and I have no idea why I dropped in the first place. So I had the juice box, waited 15 minutes, checked again and I had gone up to 112 already and felt confidant enough to go back to sleep. I woke up at 7:00 with a BG of 150, not ideal, but I slept and woke up without paramedics or terrifying myself or hubs.
Tuesday, October 1, 2013
Friday, September 27, 2013
night and didn’t realize the entire opened bottle of strips didn’t make it back into their case
Thursday, September 26, 2013
Tuesday, September 24, 2013
Hockey is back baby!!! A coworker gave me tickets for the preseason opener Friday night. It was a great night! Hubs and I grabbed a quick bite to eat and then met up at the arena with his cousin and his wife. Lines were out the door long, but moving pretty quickly. I've been to plenty of baseball games, there have never been metal detectors or wands so I gave security no thought until we got close to the head of the line. Security was checking everyone out with metal detecting wands. Great! We were told to remove anything metal from our purces so as I was trying to take things like keys, make up brush, compact mirror, purse table holder and the like out of my Mary Poppins bag my husband who was ahead of me was telling security they couldn't wand me, I have an insulin pump. Security dude in our line waved over the security lady in the line next to ours and told her to check my purse and pat me down, don't wand me. So as she is taking the extra time, (maybe it only seemed longer because of the attention I was getting), patting me down and closely inspecting (ok maybe just glancing), I'm my purse, people are starting to stare and the head security chick is trying to yell at her above the crowd that there is really no need to pat me down, just check my purse. I'm sure it didn't take as long as it felt and I sure am glad I didn't know ahead of time about the metal detectors or I would have been a nervous stress ball all day/evening before hand thinking about and wondering if security and hubby would get into a fight about my pump, me jumping in or crying out of frustration. Thankfully none of the scenarios I would have possibly thought of in my mind even came close to happening and I had no chance really of even thinking of those scenarios. Security was curtious and made no big deal. Now I just pray no issues with TSA or anything next month. I do plan to try out the TSA Cares program that I've read about among the DOC. Flying and airports make me nervous anyway, now having this pump..... I'm so tempted to take a pumpcation while on vacation.
Friday, September 13, 2013
30 Things About My Invisible Illness You May Not Know
6. The hardest part about mornings are: Having to eat breakfast. I could skip, but I know I’ll be hungry once I get to work and I can’t just grab a donut or something from the vending machine. I do need to eat healthy because breakfast really does have a huge affect on the rest of my day and blood sugars.
7. My favorite medical TV show is: It was Mob Doctor, but I don’t think it’s on anymore.
8. A gadget I couldn't live without is: My blood glucose meter
9. The hardest part about nights are: Sometimes it’s remembering to check my BG before bed. If I end up remembering after I've brushed my teeth and then have to eat a snack to keep from going low at night. That’s just rotten!
10. Each day I take pills & vitamins. Both- 3 types of pills and 5 vitamins
11. Regarding alternative treatments I: I think that they can be good, and I know that some people reading this will not agree with me…. Type 1 there is NO alternative to insulin. I don’t care who you are, if you are not using insulin you are not T1. I met a woman recently who insisted that her doctor diagnosed her with T1 and all she had to do was a no carb diet. Really? Get another doctor! PCOS, I’ve looked into alternatives and for me they don’t work. Only pills and the same with DI and Hypo Thyroid.
12. If I had to choose between an invisible illness or visible I would choose: Invisible for sure! As it is I hate it if a high or low cause me to receive attention. I don’t even like it sometimes when my husband starts when I’m low. Sometimes during a bad low I just need to be left alone, but kept an eye on, and given peace and quiet so I don’t flip out.
13. Regarding working and career: I have to work for health insurance. No independent business on my own, gotta work for a company. I've said it in past blogs, but it does kinda suck. I've had ideas of other things I've wanted to do recently, but I can’t branch out independently.
14. People would be surprised to know: I still think that despite my blogging no one other than another t1 can understand how much work this disease is! It’s tiring. Also, that despite a happy face that I try most of the time to slap on, how not good and unhealthy I feel most of the time. I've pretty much forgotten what feeling “normal” is like.
15. The hardest thing to accept about my new reality has been: Well, the pump is the newest reality, so I guess not wearing what I want all the time. I know that as women getting dressed can be multiple wardrobe changes but wearing a pump makes it SOOO much harder. I've really struggled with that this summer and have wanted to go out on a shopping spree. I've felt very frumpy, gross and unattractive in my clothing for most of the summer. I know this may seem vain, but when there are so many other things along with the disease to worry about it just heightens the small things as well on top of just adding feeling unattractive.
16. Something I never thought I could do with my illness that I did was: I can’t think of anything, maybe when I’ve had a baby that will be different.
17. The commercials about my illness: Hate them all, pretty much a bunch of crap info that is incorrect.
18. Something I really miss doing since I was diagnosed is: Eating ice cream when I want and 7Eleven slurpees and Icees from the movie theater.
19. It was really hard to have to give up: See #15 and #18
20. A new hobby I have taken up since my diagnosis is: Blogging, and reading other blogs on T1. Or maybe it’s more of an obsession.
21. If I could have one day of feeling normal again I would: I'd eat whatever I wanted, but not over eat so that I could go on a nice long walk or bike ride without worrying about a low or high or having to take my pump with me and then I'd eat a huge chocolaty ice cream something for dinner. I'd also wear one of my favorite dresses all day no matter what I was doing that day since I haven't really for more than a couple of hours all summer cuz it's a pain. I'd also go swimming and it would be glorious because I wouldn't have to worry about checking my BG and bolusing insulin every hour during swim time.
22. My illness has taught me: That I’m stronger that I ever thought I could be. There is no choice.
23. Want to know a secret? One thing people say that gets under my skin is: I don’t want to hear about the person you know that had a limb cut off or passed away because of diabetes. I don’t want to hear about the risks of pregnancy or how you know someone who’s child passed away or was born with severe problems because of their gestational diabetes. I know these things, I don’t live under a rock, I’m a smart person that does lots of reading and research on this. I don’t want to hear the negative, I live with enough fear regarding this. Also, I don’t need people to monitor me when I eat. What I eat and when I eat is no one else’s business. Only one person has permission to monitor me and what and when I’m eating and that’s my husband and he does it when I’m low to keep me from eating everything inside the pantry and fridge. Oops, I was to choose one thing? Oh well…
24. But I love it when people: Actually listen when they have asked a question and they really care.
25. My favorite motto, scripture, quote that gets me through tough times is: If it doesn't kill you it will only make you stronger
26. When someone is diagnosed I’d like to tell them: It’s really not the end of the world, but it’s okay to mourn the loss of your previous life as you know it. Cry, get mad, scream about it. It’s a hard sucky life, but you can do it, you are not alone and you are stronger than you realize. Even after a few years, it doesn't really get easier so it’ s okay to still have those times of feeling empty, lost and a frustrated. Personally, I have never had to seek therapy or use meds for depression, but a lot of people with T1 have and do and there is no shame in that. If you get to that point don’t be ashamed, seek help for it or if you have to go on meds, it’s okay and don’t let anyone make you feel bad about yourself for it. Also, don’t be afraid to ask for help and reach out for support. You need to, it’s essential to have at least 1 person that you trust and is in your corner cheering you on in this fight. So don’t be afraid to find someone to back you up.
27. Something that has surprised me about living with an illness is: How sensitive it has made me to others with an illness. We have no idea what someone else is going through if we are not dealing with it ourselves.
28. The nicest thing someone did for me when I wasn't feeling well was: Probably hubs, when he keeps an eye on me, takes over dinner prep when I’m low. Speaks up when we are out with people and I’m not feeling well and makes sure that I’m taken care of or takes steps to make sure there are no issues.
29. I’m involved with Invisible Illness Week because: I think it’s important for people to know about this and be educated on this disease.
30. The fact that you read this list makes me feel: Not alone, that you care, and want to try and understand what I have to go through on a daily basis. Thank you!
P.S . Due to operator error, for some reason sometimes when I start out writing my blog in a Word document and then paste it for some reason some of the paragraphs/words come up bold and I can't see to change it. Sorry for the annoyance!