“Betes, you are a royal pain in the …. I got no time for
that!” These were my thoughts when my CDE emailed me back this afternoon after
I sent her my BG log this morning. When I go into the doctor’s office she
downloads my pump and sees graphs and trends. I have the capability to do this
as well, but I have never taken the time to do so and I have never been asked
to so I haven’t. Now she is asking me to download my pump info to the Carelink
online program and send her my log in information so that she can take a look
at my trends. Eeeerrrr….. I know this is something that probably really needs
to be done, I mean, she wouldn’t be asking if it didn’t, but that’s probably a
night that will be spent trying to figure what the heck to do and I’m not sure
when that is going to be. Not tonight and I don’t know if I will be able to get
to it tomorrow night. Right now, I just want a night to sit on my butt on
the couch and do nothing. Not staring at a computer trying to figure that crap
out.
Medtronic has just had their “Artificial Pancreas” approved
by the FDA and I’m seeing a lot of people in the DOC with the same feelings as
mine. That’s crap! It’s just another marketing ploy to try and get the
uneducated T1 consumer to buy their product when all it really is, is a pump
with an automatic shut off feature when worn with the CGM that will shut off
when a low is coming on. Ok, that’s nice, but I’m not going to get too excited
about that. I don’t even have a CGM.
Now the Bionic Pancreas, that’s a whole other thing
that I would give anything to have if I can’t have a cure. I’m not sure
how realistically affordable it would be but, I can dream. How does this tie in
with having no time for “D”? Well, if I had a Bionic Pancreas it does
EVERYTHING! All that I would be responsible for would be changing out the
glucagon and insulin reservoirs. Not only would it save me from all the
calculating and memory that “D” takes over in my head but the time would be
priceless!!! It’s really weird to me sometimes when I hear how non-diabetics
think of diabetes, even those in the medical field. I was telling someone the
other day all about the Bionic Pancreas, and when I was done this person just
looked at me and said, “Well, then it’s like you don’t even have diabetes
anymore, so wouldn’t you be forgetting how to take care of yourself? What about
if your insurance couldn’t pay for it anymore and you had to go back to a
regular pump or injects? Isn’t that kind of irresponsible? Shouldn’t you
continue everything you do now until there is a cure?”. WOW!!! I was
speechless, I wanted to flip out, but I didn’t. I decided it wasn’t worth it
and just let it go and moved on because it was the type of conversation with
the type of person that really was not interested in my answer or what I would
have to say. There would be no way that I could educate this person on the topic
because it’s basically like they didn’t hear a word of what I had just said
anyway. Really thou, I don’t get that train of thought. How could it be
irresponsible to want a device to do the work that my dead pancreas should be
doing? Especially when it would be able to do a much better job than I can ever
do? When it would be better for my health, quality of life and increase my life
expectancy? Irresponsible??? Is it irresponsible to want to be able to work out
without worrying about going low or high? Is it irresponsible to want to be
able to just go to sleep at night without the worry that I’m going to go too
low and not wake up? Or not having anymore nights of getting up and checking
because I don’t feel good and correcting however I need and then spending the
next hours during the night worried because I may have over or under corrected
so then I have to set the alarm on my phone so I wake up and check. Is it
irresponsible to want to eat, work out or whatever else may come up
without having to do math countless times a day as well as SWAGS and
calculations? Nope, I don’t think so. It would be a God send! A time saver, a
sanity saver, a HUGE stress relief. I know 5 years of this is nothing compared
to a lot of people, but I don’t have high hopes of a cure, but the all the
articles, Youtube videos and everything that I’ve seen so far on the Bionic
Pancreas seems hopeful and promising. Bionic Pancreas, bring it on! I got time
for that!
***Disclaimer, these are just my thoughts and opinions. I
have no medical training or knowledge. Just a type 1 trying to live my life to
the fullest on a daily basis.****
Jessi, I wish it was that easy to educate the uneducated. I am looking forward to additional technology breakthroughs. Nice post. Bring it on!
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