Monday, March 31, 2014
Insulin Resistance and Hormone Drugs
INSULIN RESISTANCE = Craptastic!
This is what I've been dealing with for over a week, maybe 2 weeks now. I've done everything I should, I've switched out my insulin pump infusion sites on my stomach more
frequently, I've changed infusion sets, I've changed insulin, I've waited 15-20
even sometimes 30 minutes after giving a mealtime insulin bolus before eating….
None of it has worked. Since I don't know what is going on with my cycle and I'm really not sure when or if I'm going to start I thought maybe it was
because I would start my period in the next week or so, over the weekend I
played it off to maybe it’s cause I was getting a cold, (it hasn't really
turned into anything). Also over the weekend we were out of town visiting
family and I played if off to being off schedule and maybe lack of sleep.
Today, being back and on my normal routine and after evaluating everything that I've done since these stupid highs have kicked in and going over my meter logs
and my Dexcom logs I decided it was high time to contact my diabetes BFF, my
CDE. From somewhere around 10:30 this morning until after 3:30 this afternoon I was high, as in 200’s almost 300's high. I felt like crap, tired, groggy, emotional, head
kinda heavy and foggy, and sick to my stomach, peeing like a racehorse and wanting to chug enough water to fill the Mississippi. I needed to take action because
nothing I have been doing is working. I've been kicking up the temporary basal
rates on my pump anywhere from 30-65% higher than normal and the highs are
still really ugly. I sent my, Dexcom logs, my meter logs, and my daily insulin
totals over to my CDE and told her everything I've been doing. Even though I
had told her two weeks ago when I last sent in all my logs that my infertility specialist,
Dr. O, had put me on Letrozole, I reiterated this again. I heard back from her
almost immediately, she had missed it two weeks ago when I told her I had been
on Letrozole and she apologized profusely.
Even though it’s been 3 weeks since I was on it and I only take it for 5 days
it apparently wreaks havoc on my BGS and will make my need for insulin
increase, it causes an increase in insulin resistance!!! Oh joy! This is what I have to deal with now for a bit each month now until I do get pregnant and while taking Letrozole once a month. She says she
can see the huge difference for my need for more insulin since I talked to her
two weeks ago. She increase my basal rates and my lunch and dinner time insulin
to carb ratios drastically. I’m to touch base with her every few days now to
get things tight and were they should be again and she said to check, check, check
my BGs often. I felt relieved that I now
knew I had really been doing everything right and like I should, but I felt
guilty for letting it go for so long and not contacting her sooner. As excited as I'd be to find out I'm pregnant I'm not sure if I'd scream and laugh with excitement or burst into tears of frustration and fear of what these highs may have done to a baby. When I say that I've been running high I don't mean just here and there, I mean it's the majority of the day for hours on end. I can wait the amount of time that I should between taking insulin and eating and once that food kicks in it's almost as if I've not taken any insulin. Maybe not quite to that extreme because if that were the case I'd have ended up in the hospital I'm sure. I guess this is just a tiny sneak peak of what the later part of a pregnancy for me will be like. I was feeling quite discouraged this afternoon with all of this and had sent out a text to some good close friends that I could use some prayers cuz I wasn't doing so hot with all this. I got some nice encouragement back and even when I got home from work Brad offered to stay home with me tonight from the worship band that he plays on on Monday nights, if I needed emotional support and because I wasn't feeling so great. It was very sweet of him but I told him no, no need. I'm thankful that I have these people in my corner. It was a day I needed to know that even though no one I know understands, they are still there cheering me on and rooting for me as I fight this fight.
Thursday, March 27, 2014
Continuation: T1D, PCOS, Hypothyroid....& A Tiny Human???
Elation, excitement, joy, tears, relief…. All things I felt at
the end of my lunch break yesterday when my doctor’s office called me right as I was about to walk back into work. After
getting off the phone I couldn’t help but break down crying. I apparently didn’t
realize just how anxious I’ve been. I could have cried way more but had to go
back to work. What did the nurse say that would cause all of this?
I OVULATED!!!! THE MEDICINE WORKED!!!!!!!!
My BFF said she doesn’t think she has ever been so excited
for ovulation before. No joke!
P.S. Yesterday was our 3 year wedding anniversary, this is such a great anniversary gift!!! I think that the only thing I may ever be more excited about in my life is a positive pregnancy test. EEEEEKKKKK........
Wednesday, March 26, 2014
Pump Malfunction, User Error or Just Dumb Diabetes???
Yesterday was a rollercoaster of BGs that led into a
fantastically craptastick night of a stubborn, unknown reason of a high. I have
no idea why I stayed like this from about 10pm to about 5am when I finally
dropped below 150. I calculated carbs correctly at dinner, which was not a
fatty meal, didn’t splurge on a snack, drank lots of water and yet at 9:30 I
started to see the arrow on Lexie slightly go up. By 10:30 I was at 179 and
even though Lexie’s arrow had flattened out I still had a feeling that I wasn’t
going to go back to a happy range any time soon. I jumped on the exercise bike at 10:45 and rode
my heart out for 20 minutes until I saw a decline start to happen on Lexie’s
screen. She showed that I was starting to go down so I stopped ridding when she
was showing that I was steadily dropping below 163. Went to bed with my high
alarm still set at 150 and high snooze at 30 minutes figuring that I was
heading in the right direction and would even out soon enough and that I wouldn’t
get woke up by the high snooze. WRONG! First time I was woke up I figured no
big deal, I was right above 150 and had to be dropping. I had insulin on board
still in my body from the correction bolus and with just getting my sweatabetes
on I had to be dropping at a safe pace. At least that is what sounds pretty
logical but not what really happened. 12:30ish woke up again and this time I
was back to 160’s. I laid in bed wondering I should change my infusion site, I
had been putting it off because I had forgotten that I should do it that day
and had decided to wait to the morning, but laying there wondering what was up
I decided to go ahead and switch things out. I grabbed my “D” bag next to the
bed, grabbed a new set and alcohol swab and did my thing praying that this
would take care of things. I changed the high alarm to go off every 45 minutes
instead of 30 and tried to go back to sleep. 45 minutes later and I was still
climbing. Long story short, this is how my night went, correction bolus after
correction bolus every couple hours and still I got up to just under 200. At
one point, half asleep and tired and getting frustrated and straight up pissed,
I don’t know what time it was but when trying to give myself a correction bolus
through half asleep fogginess it seemed that the ACT button on my pump wouldn’t
work. Not sure if that was really the case since I’ve had no issues as of
today, but I couldn’t seem to actually get it to do anything and give the bolus
after I saw the unit needed. It seemed to freeze. I never saw it pop up on the pump
screen that insulin was being delivered, screen just went blank. I went to the
main menu, looked and it had given the correction, but then of course I stayed
awake for a while wondering if the issue was my pump not delivering my basal
rates or something. I eventually fell back to sleep for a bit thinking that if
I kept getting high Lexie would wake me up and then I know something was
seriously wrong. Instead I think I woke up maybe one or two other times and I
was finally starting to go down. No pump issues I guess. As usual, diabetes has
to be a royal pain and a mystery and make no sense whatsoever and just mess things
up.
Wednesday, March 19, 2014
One of Those Days
This has just been one of those days……..It started going in
a southwardly direction just a few minutes before heading out the door for work
this morning. I’ve already been a “little” stressed due to the whole PCOS/ovulation/BG saga. According to the Clear Blue test kit yesterday and today I should be ovulating.
We’ll see how true that is when I get my blood drawn next week. Yay! Anyway,
back to today’s loveliness. I’ve been squeezing into my jeans for a while now
and the other day I broke down and went through what I have, a lot that I haven't worn in ages, and tried them all on. I now have a stack of what I can’t possibly squeeze into any longer. Talked to
hubs this morning about needing to get new ones that actually fit comfortably
and discovered that apparently I’m in the double digits of sizes now. Really?!
Sigh… Okay, not going to let that get to me. I eat healthy, I work out pretty
good including cardio 4-5 times a week and I have been for 3 months now. No
weight loss,(dang low blood sugars before/after work out or any other time of day causing me to consume calories) but ya know what, I’m healthy. So keeping with that positive attitude
onto the next lovely downer. My phone decided to completely crap out on me just
a little past 10:00. I have a month, 1 MONTH until I can upgrade and it totally
goes capoot! I had our IT guy at work look at it and he said it’s done. Darn
it! I don’t want the crappy loaner phone from Best Buy (cuz that’s where I bought
it and have insurance through. Never getting their insurance again. It sucks.)
Really bad timing, going to visit my in-laws and new niece next week and I
really want to have my phone to take pictures. This leads to the third thing
that just really really really burns me up. Remember in my last post (in case
you didn’t read it link is above highlighted in blue), I mentioned that I had to go get blood redrawn
for the BIG hormone imbalance test because the lab messed up? I was really
hoping to hear from the nurse today with the results. I called and left her a
message with my work number to call. She called back fairly quickly and said
that she had just called the lab and they hadn’t processed my labs until the 17th
and I should have the results tomorrow! Really? I went in on the 13th
and the lady said that since they messed it up they would put it on a rush and
results would be in the next day. When I called my doctor’s office on the 17th
the nurse told me that this test takes longer and that it would be a few days.
Now I find out they didn’t put a rush on it and it will be a week since getting blood drawn once those
results are in. Stupid lab, stupid doctor’s offices, stupid dumb body of mine
that just doesn’t want to work right! Ugh, having a dead organ-pancreas, and
two lazy working glands- thyroid and pituitary just bites.
Thursday, March 13, 2014
Openly Open: T1D, PCOS, Hypothyroid &…… A Tiny Human???
I’ve been debating lately if I should write about this. I’ve
thought about waiting until I’m actually pregnant, but then I probably would
never get around to writing anything or even be able to remember
timelines. In the beginning when we
started down the baby road I didn’t want to broadcast anything because I didn’t
know how long things would take and what road it would lead down. Now, that we
are heading in the direction that we are the more I think about it the more I
feel like I should share for the sake of maybe someone else out there going through
the same things. Maybe they will find this blog and it will help them to know
they are not alone. For my own sake, maybe someone will see this and encourage
me that I can do this, that I’m not being crazy or selfish trying for a
baby…………..
Update to add since I've been writing this over the last 5 days... I got a call today from the nurse at the doctor's office regarding one of the hormone tests that they said was all good. Apparently the lab is now informing them that they screwed up and that one of the tests was done incorrectly. I have to go back to have my blood redrawn and tested. I already finished the ovulation meds for this cycle and I told the nurse that, she said that it won't hurt anything. Just when I was feeling sure about things.
Thursday, March 6, 2014
Endo Search... Will it end?
I finally had a new endo appointment yesterday and not
really sure how I feel about her….
She made me feel awful about my carb counting abilities and when I talked about SWAGing (scientific wild a** guess) said I need to stop SWAGing and start eating meals where there is no guessing. (I don’t do prepackaged/boxed anything, most things are from scratch with the exception of breads and tortillas and of course pasta and rice.) She also said that I’m not eating enough carbs. I need to eat more than my normal average of 90-130 carbs for all three meals combined.
I’ll give it to her, that maybe I need to stop overriding what my pump says on how much insulin I need, she didn’t like at all how much I tend to override my pump, but I feel like I know my body pretty well and don’t quite trust the machine as much as I should.
When she saw graphs from my pump, she really wouldn’t look at anything on my Dexcom graphs even though the nurse printed them out, she didn’t like any of the highs and lows and when she asked about them she didn’t like that I couldn’t remember what I had eaten or activates I had done 24hours before those rises and dips. She straight up told me that if I can’t remember what I did 24 hours before the high or low she can’t help me get things corrected. Really?!!! She was asking about things from a month ago!
I like eating the amount of carbs that I consume. I've seen both a CDE and a nutritionist who specialized in type 1 and both are pretty happy with my diet. I don't know if she is thinking in terms of diet for pregnancy, but if that's the case it hasn't happened yet. I'm sure once it does I'll want to consume everything in sight! As I write this the more I think that this doctor is just not a good fit for me. Then again, yesterday morning was very stressful and I was pretty
emotional already by the time I got to the appointment. I had already spent the
morning at another doctor’s office for some not really “D” related but kinda
related things. (That’s another posting that I’m working on, diabetes of course always comes into play even when it doesn't.) Work’s health
insurance just switched over and Anthem doesn’t have their act together yet so
things were a mess at the first doctor’s office and I had to leave without
getting blood work done. I had taken a half day at work to go to both docs in
the morning and I’m so grateful that work was understanding about the issues
with insurance and all these dumb appointments. They even said that when I go
back to get blood drawn I’ll get paid for that hour I’m gone. Who does that?! That’s
a sigh of relief! I know I’m a case and a half of crazy emotions lately due to
serious stress so maybe I’m blowing it all out of proportion. I did schedule a 3
month appointment, I have paperwork to get yearly labs that I want to get done
since it has been a year and I need to get my A1C done as well. I’m sick of
being me and what my body is causing me to go through. I'm trying oh so hard not to let diabetes and everything else with my body make me feel defeated, but it's so dang hard! Someone want to trade bodies? Not forever, I just need a break.
Monday, March 3, 2014
For Real?
I don't get it. How does that work? How in the world have I had nearly perfect blood sugars all day? You see that nasty high over night? That's been my life lately. Today has been a much needed break. About as close to a diabetes vacation as a person could get, but it's still never far from my mind. Now I'm praying my late dinner of beef stew didn't mess these beautiful numbers up.
Sunday, March 2, 2014
Bomb Digity Black Bean Soup
I made an amazing black bean soup last night, not your traditional creamy based soup but delicious and hearty. I called it the Bomb Digity Black Bean Soup and had a request for the recipe so here it is. I used the original recipe as the base so I'd kind of know what spices to use and quantities, but I played around with it a lot to get it to my liking and I added the carrots and celery to mine. As always, taste as you go along. Unfortunately for any other PWD (Person with diabetes) that would like to make this, I do not know the carb count so I had to SWAG.
Bomb Digity Black Bean Soup
Makes one large soup pot
What you need:
1 medium red onion
2 large garlic cloves
2 seeded jalapenos
3 medium size carrots
4 celery stalks
7 15oz cans of black beans drained
6 cups Veggie broth
1 16oz jar of salsa Verde
1 can of green chilies
Coconut oil - just enough to coat the pot
2 handfuls of dried cilantro
1 lime used for zest and juice
1 1/2 tsp chili powder
1 tsp garlic powder
2 tsp cumin
1 tsp paprika
1/2 tsp cayenne pepper
salt and pepper to taste
If you have any bell peppers on hand I'm sure that those would be great added, but for once I didn't have any.
Coat the bottom of your stock pot/soup pot with oil and turn on medium heat. While that's heating throw your onion and garlic cloves into a food processor until diced. (If you don't have a food processor finely dice your veggies and maybe even let them simmer longer to be sure that they are softened enough.) Add onion and garlic to hot oil and let onions caramelize. Next get the carrots, celery and jalapenos into the food processor until well diced. Add these to the caramelized onions. Add 3 cups of the broth to the veggie mixture in the pot letting simmer for approx 20 minutes stirring occasionally. You want these veggies be cooked very well so that they are hardly noticeable in the soup. Add all remaining ingredients: beans, broth, salsa, chilies, lime zest, lime juice cilantro and spices. Let simmer another 20-30 minutes until beans are softened.
Garnish with additional cilantro, avocado, sour cream and cheese if you like and enjoy!
Makes one large soup pot
What you need:
1 medium red onion
2 large garlic cloves
2 seeded jalapenos
3 medium size carrots
4 celery stalks
7 15oz cans of black beans drained
6 cups Veggie broth
1 16oz jar of salsa Verde
1 can of green chilies
Coconut oil - just enough to coat the pot
2 handfuls of dried cilantro
1 lime used for zest and juice
1 1/2 tsp chili powder
1 tsp garlic powder
2 tsp cumin
1 tsp paprika
1/2 tsp cayenne pepper
salt and pepper to taste
If you have any bell peppers on hand I'm sure that those would be great added, but for once I didn't have any.
Coat the bottom of your stock pot/soup pot with oil and turn on medium heat. While that's heating throw your onion and garlic cloves into a food processor until diced. (If you don't have a food processor finely dice your veggies and maybe even let them simmer longer to be sure that they are softened enough.) Add onion and garlic to hot oil and let onions caramelize. Next get the carrots, celery and jalapenos into the food processor until well diced. Add these to the caramelized onions. Add 3 cups of the broth to the veggie mixture in the pot letting simmer for approx 20 minutes stirring occasionally. You want these veggies be cooked very well so that they are hardly noticeable in the soup. Add all remaining ingredients: beans, broth, salsa, chilies, lime zest, lime juice cilantro and spices. Let simmer another 20-30 minutes until beans are softened.
Garnish with additional cilantro, avocado, sour cream and cheese if you like and enjoy!
Subscribe to:
Posts (Atom)